PANS PANDAS Resources

PANS and PANDAS are neuroimmune illnesses that are near and dear to my heart because we have seen first hand the devastating effects they can have on children and their families. I became interested in these conditions after learning that children exposed to toxigenic mold in water-damaged buildings can go on to develop PANS and other neurological and neuroimmune conditions. Below I’ve listed a few resources and links that may be helpful to you if you are caring for someone with one of these illnesses.



What is PANS? “PANS & PANDAS are two similar conditions related to neuropsychiatric changes in children, due to toxic and infectious triggers. PANS stands for Pediatric Acute Neuropsychiatric Syndrome, while PANDAS stands for Pediatric Acute Neuropsyhciatric Disorders Associated with Strep. One of the main differences between PANS & PANDAS is that the etiology for PANDAS has been established as Group A Streptococcal (GAS) infections since the 1990s. PANS, which was only coined in 2012 (1), denotes PANDAS-like cases where strep could not be implicated as the cause of symptoms, and often another causal microbe or toxin was detected, such as Bartonella (2), Epstein-Barr virus, Mycoplasma Pneumoniae, Lyme disease (though less often),  Varicella Zoster (aka chicken pox), Influenza A, and even the common cold (3). There can even be environmental triggers in PANS/PANDAS such as mold exposure, chemicals, or heavy metals.” Source

Online Resources & Information for Parents
Mold as a trigger for PANS – One Families Story

Dr. Jaban Moore

ASPIRE: The Alliance to Solve PANS and Immune-Related Encephalopathies

Healthy Kids Happy Kids

New England Pans/Pandas Association

Northwest PANDAS/PANS Network

P.A.N.D.A.S. Network

Pandas Physicians Network – PPN

The Foundation for Children with Neuroimmune Disorders

PANDAS and PANS in School Settings by Patricia Rice Doran

A Heart For All Students 

Documentary: My Child Is Not Crazy (Language warning)



Books for Parents:
-Childhood Interrupted: The Complete Guide to PANDAS and PANS by Beth Alison Maloney
-Brain Under Attack: A Resource for Parents and Caregivers of Children with PANS, PANDAS and Autoimmune Encephalitis by Beth Lambert, Maria Rickert Hong, Roseann Capanna-Hodge, Jennifer Glustra-Kozek, Lauren Stone

Books for Kids:
-What To Do When Your Brain Gets Stuck by Dawn Huebner, PhD
-In a Pickle Over PANDAS by Melanie S. Weiss
-What To Do When You Worry Too Much by Dawn Huebner, PhD