Category: Autoimmune Encephalitis

  • PANS/PANDAS: The Hand Grenade in the Middle of Your Dining Room Table

    PANS/PANDAS: The Hand Grenade in the Middle of Your Dining Room Table

    “She can’t brush her teeth anymore or get out of bed without help.”“He has seizures upon waking, had to quit school, and is terrified of his own thoughts.”“I can’t do this anymore. My child wants to die, and each night, he prays for God to kill him.”“Our child’s life has been replaced by rituals. Nothing…

  • If your child has PANS/PANDAS, Lyme Disease, or Mold Toxicity you could be accused of Munchausen Syndrome by Proxy.

    If your child has PANS/PANDAS, Lyme Disease, or Mold Toxicity you could be accused of Munchausen Syndrome by Proxy.

    An article published today highlights the story of another mother in the state of FL who lost custody of her child with PANS & Lyme Disease after being accused of Munchausen Syndrome by Proxy. After reading the news article, I felt the need to write a few thoughts for parents, caregivers, and those with misunderstood…

  • PANS/PANDAS Thoughts

    PANS/PANDAS Thoughts

    “The family stress is through the roof with this syndrome (PANS/PANDAS) — by some measures (it is) higher than kids who’ve been diagnosed with leukemia.”Susan Swedo, MD I feel Dr. Swedo’s quote so deeply. The stress is traumatic and destabilizing, to say the least. Families who have children with inflammatory brain conditions and neuroimmune conditions…

  • Autoimmune Encephalitis Can be Misdiagnosed as Bipolar Disorder and/or Schizophrenia

    Autoimmune Encephalitis Can be Misdiagnosed as Bipolar Disorder and/or Schizophrenia

    If you have a child (young or old) who has been put on antipsychotic medication or institutionalized due to OCD, paranoia, extreme memory loss, excessive feelings of guilt or despair, confusion, seizures, etc., please consider that your child’s symptoms could be related to an injury, exposure, infection or even an undiagnosed cancer. Mental Illness is…

  • Use Caution With Dopaminergic Supplements in PANS/PANDAS

    Use Caution With Dopaminergic Supplements in PANS/PANDAS

    Updated from Dec 2022. Today I wanted to share a few thoughts about supplements and PANS/PANDAS because of what I have learned through our own families’ experiences and from consultations I’ve done with moms caring for children with these conditions. Years ago, when I began researching PANS/PANDAS and Autoimmune Encephalitis, I ran across a few…