The school year is readily approaching and with it comes a string of problems for parents who suffer from MCS, TILT and similar Environmental Diseases.Below is an outline of important facts that may help teachers, parents and others better understand those who are suffering from these disabling conditions.
In a short summary as explained by Lisa Lavine Nagy M.D. who graduated Magna Cum Laude from The University of Pennsylvania and then from Cornell Medical College; “MCS is a multi-system disorder, usually polysymptomatic, caused by adverse reaction to environmental incitants present in air, food, water and habitats. Often caused by significant exposure to mold or chemicals then causing intolerance to small amounts of the same. It is not a psychiatric condition” Source
- “Formaldehyde which can be found in foam insulation, plywood, particleboard and press cabinets, fabric finishes, new carpet, polyurethane foam rubber (used in pillows, cushions, mattresses and rug padding), mobile homes, adhesives, synthetic clothes that crease resistant, wrinkle resistant.
- Oil vapors: from oil furnaces, motor-oil air-conditioning filters, electric kitchen appliances such as food processors, blenders, can openers.
- Polyethylene plastics: fake leather, artificial flowers, shower curtains.
- Household chemicals such as dry cleaning chemicals in clothes, mothballs, rug-cleaning products, paints, solvents, stain removers, air fresheners, window washing compounds.
- Polyesters in clothing, upholstery, drapery, furniture and stuffing for pillows and quilts.
- Pesticides residue on cottons and woolens; residues from exterminators.
- Epoxy adhesives on plastics, electronic equipment (TVs, microwaves,) which release gases when heated up.
- Common school paraphernalia such as carbon paper, ink, mimeographic and duplicating chemicals, glue.” Source
So how does all this affect the new school year for a parent with MCS? Below are just a few facts to consider:
1. Back to school shopping cannot be done due to chemicals, molds and VOCs present in stores. Parents with MCS are forced to purchase supplies online at a higher price.
2. Reviewing teaching curriculum books and other textbooks for the upcoming school year without wearing a respirator, using a glass reading box or setting books outdoors to air out for several weeks is impossible due to sensitivity to the ink, glue and other chemicals used in book making.
3. Conferences and events with other students, teachers and parents is out of the question as most use fragranced products.
4. Library visits and checking out library books is not an option due to the musty smells and fragrances both inside many libraries and impregnated on books.
5. New clothing for the school year has to be soaked in vinegar and water for days then washed several times in baking soda and fragrance free soap to remove Formaldehyde and other chemicals used in the manufacturing process.
6. Even though you’d love to volunteer in school events, field trips, lunchroom activities, classrooms and PTA meetings you just can’t. There are too many chemicals in the air including fresheners and perfume which can render a person with severe MCS incapable of driving, walking or breathing.
In order to teach, tutor and guide their children they must spend double or triple the amount of time learning and relearning in order to help their children effectively. This is especially difficult for homeschooling parents.
If you can manage back to school week and the school year without any of the restrictions above, be thankful. About 15% of the population can’t including me.
The World Health Organization says that as much as 24% of global disease is caused by environmental exposures.
Interestingly the WHO has a lot to say about some diseases cause by indoor air pollution. Did you know that there are 37 million cases per year; 41% of all cases globally of Lower respiratory infections, largely from air pollution, both indoor and outdoor?
Also, Chronic Obstructive Pulmonary disease (COPD) — a slowly progressing disease characterized by a gradual loss of lung function has approximately 12 million cases per year; 42% of all cases globally, largely as a result of exposures to workplace dusts and fumes and other forms of indoor and outdoor air pollution. Source